Day 18- keeping the faith
Romans 8:25 But if we hope for that we see not, then do we with patience wait for it.
Psalm 27:14 Wait on the Lord: be of good courage, and he shall stregthen thine heart. Wait, I say, on the Lord.
Psalm 39:7 And now, Lord, what wait I for? My hope is in thee.
Today is a day we have been keeping the faith. Beginning my day reading a devotion my sister-in-law sent Saturday was the perfect touch on my heart. Some times i beat myself up for not living up to a standard i have set for my self and then days like today when the reading is absolutely perfect for the day. The encouragment to wait with Hope and Patience. I prayed then to wait on the Lord with Hope and Patience not knowing what the day would bring.
Today was/is a day to wait on the Lord. Waiting is tough. Not knowing is tougher! In my book anyway! Waiting to see how meds are working or not working. Waiting to see the recovery of my beloved son. Waiting to know the right timing of the day.
Tyler's brain injury is a diffuse axonal injury. It is where the brain is shaken and rips and bleeds. There are little injuries in different places of the brain. So until those places in his brain figure out new routes to take we do not know what recovery will look like. We play the waiting game. The doctors play the waiting game to see how Tyler responds to medication. We play the waiting game on his memory and brain processing.
Today was a good day, we again have to wait and see how Tyler responds to the change in medication. There is a process the brain has to go though to heal, there are healing stages but no timeline as to how long each stage lasts. It is interesting to know the stages. Again, a waiting game. Its a waiting game as to what Tyler remembers and who Tyler remembers. He can spat out all kinds of work projects, programing projects, how to throw a disc and yet not always sure who i am. It is interesting to watch the brain work.
Here is the scale they use to detetmine where we are in recovery. Thease are not clear cut lines. So right now Tyler is bouncing between a stage 4, 5, and 6. All of them you notice he us confused. He does not know what has happened or why. This is why it is best to not agitate him with him trying to remember who people are. As i was told yesterday, right now we have 24/7 care. When he comes home we will not. Right now i can take a break easily, when home depending on his recovery it will not be so easy.
Ranchos Los Amigos Scale
Level I: No Response
Level II: Generalized Response
Level III: Localized Response
Level IV: Confused-agitated
Level V: Confused-inappropriate
Level VI: Confused-appropriate
Level VII: Automatic-appropriate
Level VIII: Purposeful-appropriate
Level II: Generalized Response
Level III: Localized Response
Level IV: Confused-agitated
Level V: Confused-inappropriate
Level VI: Confused-appropriate
Level VII: Automatic-appropriate
Level VIII: Purposeful-appropriate
Please join me in praying for Tyler's recovery. We are asking for a FULL recovery so Tyler can be back doing the things he wants to do. We have been told this could last up to 2 years. Again we play the waiting game. We want to wait with Hope and Patience. Pray immediately for Tyler to sleep thtough the night, so he will be ready for therapy in the morning and all day. Pray for the doctors to have wisdom and knowledge for the perscriptions. Pray for chris, ashley and i to be a help not a hinder in the process of recovery. Pray my hubby gets sleep while he is sleeping in a recyliner at Rehab. Pray we will know when we can not be there as much. Pray for our family, Ashley's family that they know they are loved and don't feel deserted by us being gone.
We have faith in the Lord's healing on our son and know the power of all the prayers being lifted on our behalf. Thank you so much for loving us so well.
And while you are praying would you please pray for all the families here at the Hospitality House? And if you are in Charlotte and can would you consider donating items to the house like paper products, cups, plastic ware? This house could use it and i am sure the one in Hickory and other places could use them as well. Also, would you pray for the doctors, especially those in the ER and ICU units. They deal with so much and see so much. Lets add in the Rehab doctors, nurses, and assistants. They have a touch job and see some crazy stuff. For the most part, everyone at the Rehab facility have been so sweet to Tyler and all of us and there are times things have not been easy!
Much love
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