I sit and wonder
I find myself so much sitting and wondering! Honestly, wondering and reminding myself this is real. My strength and help comes from the Lord. How can i say that? I know because even the most down pour of tears i can be calmed and feel peace with true praise music. While i was spending time with dad i made a you tube play list with scripture songs that remind me of the holy spirit residing in me. There are times i can read scripture or listen to someone pray that does not calm me or bring me to worship like these songs do.
My play list?
It is well with my soul
When the waters rise -thanks Pam
In Christ Alone
You are my all in all
The Lords prayer- thanks G-pa
Where does my help come from
10,000 reasons
Praise you in this Storm
I will lift my eyes
Great are you Lord
Through these songs come healing.
Today has been good. I showed up while the team of doctors were here. They are so good about communication. I know this does not happen at every hospital. With dad we felt like one doctor never knew what the other doctor was doing or thinking. Not here everyone here seems to work together. It really is amazing to me. Tyler is in such good care.
Tyler was up and active while they were here, outside his door. PT just worked with him, got him up got him to walk with them a few steps. He answered all or most of their questions. He wanted to go to the desk so they moved him to the bed. Then speech came in and they tried to get him to drink something. He would spit out whatever they gave him.
Then she said "Tyler i need you to swallow"
He said "oh swallow, ok"
They gave him more and he swallowed.
They all laughed. The team loves his sense of humor.
All the therapy ladies all said "i think we need to tell him what we want him to do, instead of what he is doing."
So instead of drink tell him to swallow.
Tyler has spoke and recognized most of his family. We have a big family and i always seem to leave someone out and i am not in his condition.
We are so encouraged by the progress and are taking this one day at a time.
We are so encouraged and humbled by the number of people praying for him and us, loving us and providing for us. We have had dinner brought up to us, all meals really. We have had gift cards given to us, although Panera has been closed for 2 days. Hummmmm!! Closed for cleaning!!?? We have lots of snacks. Our kids are getting dinners. Its been crazy! We are so thankful to have the out pour of love. I never knew so many people love and know us. The Lord is good and his love lasts forever.
After meeting the the care team, Chris and i went to the rehab center they will send Tyler to. Walking through there was surreal. It seemed good. Felt like a dream because the lady's name was Catalina, that was what the Romanians called Katelyn. Catalina had a strong accent could of been Romanian. I just felt like it was an out of body experience. I guess i too am still in shock. I feel like the same day replays. I find it crazy to think its day 6.
We have a new normal. I pray my kids know every single day how important they are to us, how much we love them, how proud we are of them. We may not be proud of their actions, but proud of them!
Tyler is an encouragement to us all. He knows what he wants and does it!
Prayers for today - continue healing. Continue progress, tomorrow tube removal, strength for those in the room(family) to walk out and let nurses care for him even when he is calling for them. Its really hard to leave when he says he needs us. Tyler very rarely "needs" anything. Also, think we can calm him when actually it makes it worse by stimulating him more.
Our shift work seems to be working. We are broke up in 8hr shifts. Chris 2am - 10am, Sherrie 10am - 6pm, Ashley 6pm -2am. This way we have a main caregiver with him all the time. Other close family is coming in as support to allow breaks and food.
We are holding fast to the promises of the Lord. Where does my help come from? My help comes from the Lord, maker of heaven and earth.
I cannot express enough to my family, friends, acquaintances, friends of friends how much we appreciate them and their prayers.
My play list?
It is well with my soul
When the waters rise -thanks Pam
In Christ Alone
You are my all in all
The Lords prayer- thanks G-pa
Where does my help come from
10,000 reasons
Praise you in this Storm
I will lift my eyes
Great are you Lord
Through these songs come healing.
Today has been good. I showed up while the team of doctors were here. They are so good about communication. I know this does not happen at every hospital. With dad we felt like one doctor never knew what the other doctor was doing or thinking. Not here everyone here seems to work together. It really is amazing to me. Tyler is in such good care.
Tyler was up and active while they were here, outside his door. PT just worked with him, got him up got him to walk with them a few steps. He answered all or most of their questions. He wanted to go to the desk so they moved him to the bed. Then speech came in and they tried to get him to drink something. He would spit out whatever they gave him.
Then she said "Tyler i need you to swallow"
He said "oh swallow, ok"
They gave him more and he swallowed.
They all laughed. The team loves his sense of humor.
All the therapy ladies all said "i think we need to tell him what we want him to do, instead of what he is doing."
So instead of drink tell him to swallow.
Tyler has spoke and recognized most of his family. We have a big family and i always seem to leave someone out and i am not in his condition.
We are so encouraged by the progress and are taking this one day at a time.
We are so encouraged and humbled by the number of people praying for him and us, loving us and providing for us. We have had dinner brought up to us, all meals really. We have had gift cards given to us, although Panera has been closed for 2 days. Hummmmm!! Closed for cleaning!!?? We have lots of snacks. Our kids are getting dinners. Its been crazy! We are so thankful to have the out pour of love. I never knew so many people love and know us. The Lord is good and his love lasts forever.
After meeting the the care team, Chris and i went to the rehab center they will send Tyler to. Walking through there was surreal. It seemed good. Felt like a dream because the lady's name was Catalina, that was what the Romanians called Katelyn. Catalina had a strong accent could of been Romanian. I just felt like it was an out of body experience. I guess i too am still in shock. I feel like the same day replays. I find it crazy to think its day 6.
We have a new normal. I pray my kids know every single day how important they are to us, how much we love them, how proud we are of them. We may not be proud of their actions, but proud of them!
Tyler is an encouragement to us all. He knows what he wants and does it!
Prayers for today - continue healing. Continue progress, tomorrow tube removal, strength for those in the room(family) to walk out and let nurses care for him even when he is calling for them. Its really hard to leave when he says he needs us. Tyler very rarely "needs" anything. Also, think we can calm him when actually it makes it worse by stimulating him more.
Our shift work seems to be working. We are broke up in 8hr shifts. Chris 2am - 10am, Sherrie 10am - 6pm, Ashley 6pm -2am. This way we have a main caregiver with him all the time. Other close family is coming in as support to allow breaks and food.
We are holding fast to the promises of the Lord. Where does my help come from? My help comes from the Lord, maker of heaven and earth.
I cannot express enough to my family, friends, acquaintances, friends of friends how much we appreciate them and their prayers.
Comments